Comment: It seems that together we will raise awareness of rare diseases, rare diseases.
Rare Diseases.
Today, February 28 marks the first World Day of rare diseases (ER). According to the Federation English Rare Diseases ( ERDF) 20% of those affected by rare diseases take 10 years to be diagnosed. As the name implies, is a disease little known to most. This ignorance is its low incidence (1 in 2,000 people) but that does not mean they are less important, since many of these diseases are fatal. See full story.
TV3 Marathon 2009 was devoted to rare diseases
The board of the Fundació TV3 Marathon has decided that the issue , 2009 is dedicated to rare diseases, a large and diverse group of serious diseases that affect a maximum of 5 persons in every 10,000 people, according to the foundation.
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About 42,000 people suffer some of the 8,000 rare diseases in Navarre.
Some of these diseases are, for example, fibromyalgia, chronic fatigue syndrome, scleroderma, spina bifida, lupus , retinitis pigmentosa, nonketotic hyperglycinemia and so on.
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Nearly 4,000 Cadiz with rare diseases spend each year by hospitals.
The province celebrates today (02/28/1909) World Day of these ailments minority.
Some of these are cystic fibrosis, lupus erythematosus , hemolytic anemia, or amyloidosis. The document which the Ministry of Health has posted on its website recognizes that these conditions were diagnosed in hospitals and that there may be cases not treated in hospitals and will be overlooked in this plan.
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CValenciana.-edits The College of Pharmacists a guide with information on chronic diseases and where to go.
Specifically, the book offers an overview of the major chronic diseases like Alzheimer's, anorexia and bulimia, the anticoagulant, rheumatoid arthritis, headache, celiac disease, Crohn's disease, diabetes, mental illness, multiple sclerosis, fibromyalgia, lupus, masectomizadas, ostomy, Parkinson's, psoriasis, Down syndrome, etc..
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